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  • Public, Open Access
  • All Journey Phases; Myelodysplastic Syndrome
  • Myelodysplastic Syndrome Support Group

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Hi, I'm Alex W.
I was diagnosed with megaloblastic anemia in 6/17 and after bone marrow biopsy with MDS in 12/17. I do not have del5q. I've had weekly shots of 60,000 units Procrit for 18 months which kept my RBC ...
  • Sun Jul 28, 2019 · Like1
I'm JoMac53, and I'm a survivor of Myelodysplastic Syndrome
Hello. Is this an active message board? My name is Jo and I have MDS-EB1. Going for eval by Rutgers Cancer Institute of New Jersey (RCINJ) transplant team at Robert Wood Johnson (RWJ) New Brunswick...
  • Thu Apr 12, 2018 ·
I have had MDS for 1.5 years. I have yet to locate an MDS support group in Georgia. Yes I know that there are some national groups and some web groups. I am exploring the possibility of orga...
  • Sun Feb 7, 2016 · Like1


Larry. By numbers I mean red, white, Hemoglobin and platelet levels. My white cells are extremely low 2.2 or 2,200 compared to yours of 17,000. Normal white are 4,000 to 11,000. So mine are very lo...
  • Wed Oct 23, 2019 · Like1
Hi, I'm Barry P H.
Now that your results showed "remission", how did this affect your schedule of vidaza? Did you get to go longer than 4 weeks before you had to begin your 11th dose?
  • Tue Jul 26, 2016 · Like2


Hi, I'm Clifford P.
Toady I had my second blood work since my first Vidaza treatment. Platelet count was up, RBC was up, WBC down a little. I'm happy with the results.
  • Mon Mar 20, 2017 · Like4
Created Nov 28, 2012
We found this useful when talking with the doctor.